The Rare Disease That Binds Sisters Together Megan Kaverman and her sister Katie Gusching have been on a journey of misdiagnosis, perseverance, and hope after both were diagnosed with heritable pulmonary arterial hypertension (PAH), a rare genetic disorder that affects the small arteries in the lungs.
Their experiences highlight the flaws in our healthcare system.
Megan's struggles to find answers for years, being dismissed by doctors as "too young" to have a heart problem, demonstrate ageism and medical complacency.